CENTER FOR CLINICAL OBSERVATIONAL INVESTIGATIONS
This dataset contains 2 distinct basic statistics and separate condition concept counts. Select from the buttons below to access each version of the Basic Statistics and Condition Concept Counts. Condition concept counts are not available for NCCR in SEER*Stat
The National Childhood Cancer Registry (NCCR) is a US based cancer registry operated by the National Cancer Institute (NCI) that includes data from individuals with an initial cancer diagnosis, under age 40, residing in any of the NCCR registries for cancers. The data represents 75% of all U.S. children and adolescents and young adults (AYAs) diagnosed with cancer. Registries contribute data to different data products based on the access tier for how data are released to the public and researchers, from fully open-access to controlled access data products. Data are de-duplicated across different state and central cancer registries then real-world health care data are matched for the same person across different sources to compile data products. The NCCR Data Platform consolidates registry and real-world data in one place where researchers can easily search, visualize, and request de-identified data. Researchers can explore and request data from various sources (e.g., pharmacy and medical claims, area-based measures, clinical trials partners, Virtual Pooled Registry, and Electronic Health Record [EHR] systems and other clinical information systems from treating facilities) that provide more in-depth information on the patient's cancer journey and survivorship. The NCCR Data Platform is ideally suited to helping researchers visualize aggregate statistics about available data for hypothesis generation and planning study designs.
NCCR data product tools include NCCR*Explorer, NCCR database in SEER*Stat, and the NCCR Data Platform and can be found for comparison here: NCCR Data Products. Researchers must submit an application for a SEER Research Plus access level to use NCCR data in SEER*Stat or the Data Platform. For more information on SEER please visit our SEER dataset profile.
| Dataset Contents | |
|---|---|
| Update Status | Active |
| Dataset Type | Registry |
| Context | Not Applicable |
| Region | United States |
| Age Restrictions | 0-39 years at first cancer, subsequent cancers for the same population at later ages |
| Access & Availability | |
|---|---|
| Native Data Structure | Custom |
| Hosting | Registry data in the SEER*Stat application; De-identified individual-level data from all data sources through the NCCR Data Platform. |
| Database File Size | Not Applicable |
| Availability Restrictions | Requires eRA Commons or an HHS account and SEER Research Plus application |
| Data Identifiability | HIPAA: De-identifiable, Common Rule: De-identified |
Database Contents
| NCCR*Explorer | NCCR in SEER*Stat | NCCR Data Platform | |
|---|---|---|---|
| Participating Registries | 28 NCCR Registries | 20 States and Seattle | 22 SEER Registries |
| Cancer Case Counts | 1,897,938 | 1,418,577 | 1,433,710 |
| Population Coverage (% of U.S. ages 0-39) | 75% | 59% | 58% |
| Years of Diagnosis | 2001-2021 | 1997-2021 | 1995-2021 |
| Data Sources | NAACCR CiNA submissions | NAACCR CiNA submissions | Multiple sourcesǂ |
| Types of Analyses | Incidence, Survival, and Prevalence by patient demographics and cancer type | Frequencies, Rates, Survival, Prevalence | Descriptive statistics of registry and linked real-world data; Receive de-identified individual-level data, import scripts, and data dictionaries for us in statistical analytic software |
ǂ Links data from population-based cancer registries and real-world data partners. Nationally de-duplicated between registries and across all data sources (About the NCCR Data Platform - NCCR Data Platform)
For open-access data:
For registered and controlled access data:
Last updated Sep 22, 2025